We had our appt with Dr. Sharfman from Johns Hopkins yesterday at noon. He was very gracious and saw us during his lunch hour. Dr Sharfman thinks that Jon will get relief from the newly FDA approved "BRAF" drug. We should know by the beginning of next week if Jon is able to receive the drug. Please pray that Jon is able to get this drug and it arrives quickly. Basically, BRAF reduces "tumor burden" in the body and is very fast acting which would give Jon some relief from his symptoms. It will allow him to regain some strength and feel better so he can get further treatment.
I know I keep asking but our family would greatly appreciate you praying that we are able to get this new drug by early next week. Thank you so much!
Check out the link above if your are interested in understanding more about "BRAF" :)
Lots of love,
Susan, Sue, Susie and MOM :)
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