Saturday, August 27, 2011

Dear Friends and Family,

Jon was admitted today to St. Agnes Hospital to receive intravenous Nutrition and Hydration through a pic line. He has lost a lot of weight and was getting very weak so his doctor wanted to "build him up" so we can get the potential best benefit from the new Braff drug. "Zolbaraf" is not a cure but it is supposed to reduce tumor burden so Jon will feel better and hopefully regain some strength. He should be in the hospital for a few days.

We did get the good news this evening that the drug will be delivered to Jon and Anne's house tomorrow by noon. Thank you all for praying. This was truly a miracle since so many things had to fall into place to receive this newly approved drug that literally just arrived in the United States this week. It is being shipped from North Carolina so please pray that the coming storm doesn't cause any delivery problems on this end. Many people have offered to drive or fly across the country for us to try to get this for us...we thank you from the bottom of our hearts.

Jon is truly touched by all of your prayers. Please continue to keep our family in your prayers. Zach leaves to begin his sophomore year of college tomorrow. He also had a suspicious mole removed from his back yesterday so We ask that you pray for a good lab report. Continue to think of Anne. She is almost through her first trimester and has a tiny baby bump that makes me smile whenever I see it! Jon is taking good care of her, insisting that she eat more vegetables. Anne, of course takes amazing care of Jon.

In the midst of each day's struggles we continue to feel God's comfort and experience His mercies. Your prayers have allowed me to have the strength to put on my "super Mom" cape each day and attempt to serve Jon and Anne as they walk through this journey together.

Love and blessings,
Susan,Susie, Sue and Mom (Grandmom:)

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