October 2, 2011

Wow I can't believe it's October already!

We have had a pretty good week, this was the first week since being home we did not have to visit St. Agnes! This week will be a little different, he will be very busy this week. Jon has an appointment tomorrow morning to get CT scans to see if anything has changed. We will not get the results till Thursday when we go back to St. Agnes. In between all the hospital appointments he also has physical therapy and a visit from his home nurse.

Jon has started to see and feel some of the side effect from the Zelboraf. He has noticed more fatigue than normal because of this he had to cancel physical therapy on wednesday because he was so tired. We rescheduled it for Friday which turned out to be an amazing day for him. He took a good nap through the morning. Then around 2:30 I gave Jon his anti nausea, a couple minutes later they came right back up. About 10 minutes later the physical therapist came! I was concerned that Jon wouldn't be able to push himself as much as he likes to since he just got sick. However, when the physical therapist mentioned taking a walk outside Jon's eyes lit up and he said "I would LOVE to take a walk outside!" Once everything was ready Jon stood up to move to the couch to put his shoes on (thats a big deal too, he hasn't put his own shoes on in a while!) the physical therapist started the stop watch. He times Jon to monitor his progress. Shoes are on, Jon grabbed his really cool sunglasses that go over his glasses and we were out the door! I sent out a text to many people with this news which made them think I wasn't walking with him. I wouldn't have missed it for the world! I sent the text as he was putting his shoes on ;)

Jon walked down the side walk to the next building over and was talking the whole time. He was not out of breath and moving at a good pace. He said it felt good to walk and be outside. He walked outside for 11 minutes! When we got back to our house the physical therapist said "that was awesome!" Jon rested for a few minutes to give his legs a break then the plan was to work on "Everest." He climbed the stairs a few times and did exercises on the stairs as well. Then he cam back down to the first floor and dis a few more leg exercises standing and walking in a straight line! He was even talking about another walk later that evening. He was on a roll Friday, you would have never known he had gotten sick an hour before.

Once the physical therapist left we had a few visitors, his mom came over and my mom as well. Jon ate a little of my french onion soup from Panera Thursday evening and said it was the best thing he has tasted in so long and kept it down!  Friday he asked for more french onion soup, so I ran out and got him some, by the time I got back he had gotten sick again. He still attempted the soup but couldn't do it so he had me save it for him. He also said the other walk will have to wait. For the rest of the evening Jon rested and we watched home videos of when Jon was 3-5 years old fishing!

I will do my best to post often this week to keep everyone updated with his CT results.