We woke up early to get Jon unhooked, so I thought...I opened the TPN bag and realized it was still full! I messed up and for got to unclamp the TPN, was nervous to tell Jon. I told him and he was very calm and said we should call them and see what we should do. So I did like he said and called the TPN company and our nurse, good news was the TPN was good for 24 hours! Jon wanted to switch the TPN to daytime so it worked out well. I started TPN pump and then we started the day. I got Jon in the car with the help of my mom, and we were on our way to the hospital.
When we got to the hospital I got Jon checked in (just by walking by and waving, he is like a celebrity there!) The nurse Linda had his fan, and bed all set up and was waiting for him. She immediately started working on unclogging his picc line. it took a little time but eventually she got it! While we were there we were able to have Jon's labs done while we were there, as well as see Dr. Miller which was a bonus! She listened to Jon's lungs because the home nurse was concerned when she heard some crackling. Dr. Miller listened because Jon was concerned as well. However Dr. Miller was pleased because Jon had not had crackling before and now he is, she said this means the crackling that sounds like rice krispies is from his lung, its the sound of it expanding and she was pleased at the improved air flow. We waited for the lab results to come back before we left.
The results came back and some of the levels were borderline low. Dr. Miller came by and said she didn't think he needed one because the levels were borderline. But after talking to Jon and hearing that he was pretty tired she decided against her first decision and wanted Jon to get a blood transfusion. She said it can only help and make him feel better. She scheduled it for Wednesday.
After we made the appointment for wednesday we headed home. Jon was happy to be home and not looking forward to tomorrow but knew it would help him. We had a few visitors throughout the evening and then we did our usual nightly routine with unhooking the TPN and taking care of all Jon's meds.
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