October 27, 201

Jon has been doing well, nothing has really changed so I haven't had much to write. He continues to notice side effects such as, hair loss, joint pain, fatigue, nausea, and vomiting from the Zelboraf. We saw Dr. Miller today and she was pleased by this because it means his body is absorbing the Zelboraf drug. She brainstormed a little and adjusted a few different meds to see if some of the symptoms could be relieved. She felt Jon's stomach area where the tumors are located and felt that nothing has really changed since the last time she saw him. She seems to think that the zelboraf has stopped the tumor growth, and is not getting larger. Jon did not have scans to verify this and will not have more scans for at least another month.  

Everyone's first question for me is if Jon is eating…He has become obsessed with cooking shows such as Chopped, and Iron Chef and he dreams about all the different places he is going to eat when he is able. He is not on a special diet, but is cautious what he chooses to eat. Some days are better than others, when his stomach is feeling okay he eats small amounts of food. This week he got brave and ate a few sushi rolls, avocado, as well as cucumber and avocado. He also has had a little chef boyardee spaghetti, and his favorite stuffing with a little gravy. He also has been watching the world series and has picked up his love for "seeds" again. He has multiple favors which include, regular, BBQ, ranch, dill and I just found another flavor for him to try chili lime. he says they give him flavor with out putting anything in his stomach. 

We are continuing to take it day by day.

I hope this catches you up :)

Baby Bruce update…

She is very active and I have been able to feel her move and I even received a kick or a punch yesterday for the first time! I can't wait till it is hard enough for Jon to feel! We are both doing well :)